We have been combining therapy, helping Jude with his separation anxiety and helping me with the same, teaching me to set boundaries with Jude, not appeasing him all the time, treating him like any other child. Dealing with my anxiety about being away or separate from him.
We were doing well until the seizures started.
Let me tell you I am not a newbie when it comes to terrified parenting. I have two kids who could whack their heads on a coffee table and spend the week in ICU. I used to the whole High Alert thing. Seizures, though, are new, unpredictable, and oh god so scary. So I must admit I have backslidden just a bit.
Every night I kiss Don goodnight and slip into bed with Jude. This is the only way I can know he is not silently seizing at night. Not the best scenario, I know. Gimme another idea, I am all ears.
Jude is likely to wake up and want to look at a book with me. Or reenact episodes of PBS kids. The other night I awoke to a flashlight in my face. I was supposed to say, "Jude Hill is a blockhead, but he did pick nice tree." Jude says, "It just needs a little love." Don came in all sleepy eyes just as we were waving our hands in front of the flashlight and singing "Hark the Herald Angels Sing." "What are you doing?" he asked, and like two kids caught playing past lights out at a slumber party we jumped back into bed.
I have long taken bubble baths to try to de stress. They are somewhat successful, with interruptions like Eden's red head appearing and his subsequent insistence that no one wipes his behind properly but me, lost hamsters.
and Daddy forgetting he is watching the kids and going to the store. Now, however, Jude cannot stand even this separation, and I have learned enough from Wendy and Elana to know that it because I am scared, and that is the message that Jude gets, that he will not be okay if I am not with him. I am trying so hard to believe that he is, in fact, fine, that angels follow him and when he is not with me he is with people who love him. But for now this is the best we can do. So I hide the best I can under the bubbles while Bertie the Bus navigates the edge of the tub, trying not to fall into the drink, the white abyss. This is not healthy, he is too old to be in here while I am naked, but for now we need to be sure of one another, having almost been separated for a long, long time, whether we wanted to be or not. We have used this reprieve, this second chance to circle the wagons, regroup, and pretend like nothing bad can happen if we close our eyes and just know that we are.
In a little while, we will be ready, or I will, to be brave again. To let go again. Wave goodbye again. Say goodnight again. Close our eyes and remember that mercy, like love, doesn't forget, or fade, or duck out the back for a smoke. Some things don't disappear, even if you can't see them, even if they are hidden from view.